I happen to know all the etiquette surrounding how to perceive disability in others around you. I will start with myself and then talk about other disabilities I have encountered through various friends. I will not be using any names to maintain people’s privacy. I have type 1 diabetes and I use an insulin pump. Hypothyroidism is a non-issue for me as it is stable and I take my thyroid pill every morning. Unlike many of the people I talk to on Facebook who have not found stability in whatever they are taking. Hypothyroidism can cause debilitating menstrual cycles. My birth control fortunately can take care of that.
I also find myself on the schizophrenia/bipolar/OCD spectrum. I also have chronic anxiety that bothers me way too much despite being on 15 buspar per day. For my schizoaffective bipolar 1 I take 120 Geodon, 10 Lexapro and 15 buspar. I sometimes take more buspar on a bad day when I feel extra neurotic. Lexapro is a great med for my OCD. It works wonders. I have trouble with anti-medication psychics who think I can just up and get off meds. It doesn’t work like that.
I have an over all genetic condition called velocardiofacial syndrome. It is a deletion of the 22 chromosome called 22q11. Many people who have what I have are full-blown schizophrenics. I’m just somewhat schizophrenic being schizoaffective. I was in a study that collected stem cells from skin tissue in my left arm. I have a permanent scar from donating my skin tissue. They want to study neurons to see who is suffering from psychosis and who is not.
In order to stay stable I have to maintain solid blood sugars. I had freak highs yesterday that didn’t help. So if I’m going to be around you don’t bitch to me about my having to check my blood sugar. .It is a necessary event. Other rules I have include not letting your dogs jump up and down on my pump or infusion set. It is also important not to brush up against my set like somebody did in my Saturday yoga class. I kept it together but I think I wanted to say something.
Also, don’t ever offer me coffee or caramel based soda such as Coke. I get really manic on either. I quit drinking caffeine in and around 2010. One hot chocolate at 8 p.m. was keeping me up until 2. Hot chocolate has 5 milligrams of caffeine in it. My writings didn’t make sense. My mother thinks I’m on the wrong meds but that’s just a manipulative ploy when in fact I’m very stable now.
I thank the Goddess for my stability. I need my meds to stay shielded, grounded and centered. My psychiatrist once suggested that I take more meds in doing coven work. So I’d increase the dose if I do more coven work eventually.I believe my chronic anxiety comes from lack of meds in high school where I suffered terribly and nobody noticed how manic I was or how depressed I was.
New Agers: Never tell somebody on meds to get off their meds. That’s dangerous. My meds help keep my energy positive. Never tell anybody on psychiatric meds to get off them. That’s brainwashing, illegal and criminally irresponsible. I can bend spoons, forks and keys. The key part is a concern because I could wind up stranded somewhere if its a car key and unable to get in my house if it is a house key. I have extra keys I keep deep in pockets for this reason. Boyfriend confirms there is a weakness in the metal of my keys that I have bent. So that’s proof right there despite my skepticism. I have every right to be a skeptic.
Sometimes I’m sick to death of being psychic. It is annoying. Although I know when people are going to have psychotic breaks. It is a useful talent for a future therapist. Eventually I’m going to write about how I thought psychic ability was just part of my mental illness.
I will now move on to talking about the use of the word “retard”. That word can never be empowering like the n-word is now. It is a hate crime to use it. You are shitting on the disabled. We disabled do not use it to describe ourselves. If you use it to describe a man like Stephen Hawking well then you missed the Theory of Everything. He managed to have three kids. He has a higher IQ than yours anyway. His body is merely a trap for him It deteriorates on a daily basis. We are lucky we still have him around. He uses a computer to talk. Deal with that. He is not retarded. It is a crime to call him that because he can’t talk.
If you see a service dog, do not pet the service dog. The animal is working. If you see a blind person, they have other senses. They know what stuff feels like. They can’t see but they are not stupid or retarded for not being able to see .Likewise if you see a wheelchair, move out of the way and let them through. Never steal anything from the backpack of a person in a wheelchair. They can’t always reach it in the back of their wheelchair.
Do not stare at amputees, Many are war vets from the Iraq-Afghanistan war who fought to protect your freedom to stare at their missing limb. An amputee doesn’t need that crap. That’s just rude and puts them off. Also, cancer patients do not need to be positive all the time for your comfort. They feel shitty. Some days it is tough to pull out a positive attitude. They are already scared because they are in treatment. They do not need to be positive all the time just to fend off pity. Pitying disabled is downright ludicrous. Stop your pity party right now. They don’t need it. They only have so many spoons if you have a chronic illness Sometimes it is okay not to feel fine.
If you observe a difference,in somebody, don’t be demeaning and point it out. Autistics truly do not understand why they blunder. They have a serious impairment. I sometimes admit to losing patience with my autistic friends unless they have been taught very good social skills. So if you see an obvious or non-obvious disability you cannot always talk to people about it. They aren’t going to tell the curious. Do not call anybody a retard for having a disability. That’s rude. It is more retarded of you. Do not make somebody feel like crap for having a physical impairment.;
The first rule of diabetes is: 1) always know where the bathroom is. 2) always have food on you as well as glucose tablets. 3) always have insulin nearby because you need to eat.
On a final note: if somebody farts, they have a digestive issue. Do not laugh at farts. Fart jokes are not funny. Fart jokes are demeaning .The word “retard” is also demeaning. It can never be reclaimed. These are the rules for dealing with disabled people as far as I know them.
I want to start a web forum for patients only. It would be for people with genetic disorders of any kind.
I would tell parents not to register with us because they have plenty of places to complain on Facebook and other web sites. I have a 22q11 chromosomal deletion called velocardiofacial syndrome. I’m also an unbelieving psychic. I have emailed Uri Gellar. I can bend keys, spoons, and forks with my energy.
After yoga last week, I was all relaxed until I went to put my stuff away. First my instructor says I did a good job rolling up the strap. Then I ask her is my disability that obvious? Why are you praising me for something as innocuous as rolling up a strap? She then wound up talking to me on the floor. I asked her to stand up and not sit on the floor while talking to me. Its been a week so my memory is probably faded. But yeah, the instructor somehow had me pegged as disabled thanks to my visible insulin pump. Damn.
I was at Safeway. I was casually waiting in line for my turn. When some idiot cashier says “Its okay to put your stuff down now!” I was floored. Did she assume I’m disabled and therefore efin incompetent? How fucked up is that? I waited a fraction of a second to decide how to respond. She was chubby. I’m 101 pounds. Chubby types tend to throw themselves around a lot anyway. So I reacted “Don’t talk to me like that!” I waited more time before I put my hash browns onto the conveyor belt. Well, fucking A. I put her in her place so fast she had no idea what hit her. On a side note, my aunt decided to throw abuse in my direction and I pointed it out to her. She called my diabetes a horrible illness. I corrected her by saying “It’s not horrible, don’t say that.” How crazy is that? The woman can hardly stand up for herself anymore than my mother stands up for herself. Both know how to be abusive but not how to be assertive. Somebody suggested I hold assertiveness training classes. I would have to read some books on how to be more assertive before I do that.
So I called the pharmacy to get my prescriptions taken care of. This new Asian woman answered the phone. I pretty much heard condescension from the minute she picked up. I asked for insulin and said “I have had type 1 diabetes for 25 years, I know how to handle insulin.” I also confronted her moral superiority complex by saying that I know you think you are superior because you have a pancreas and I don’t.
She got owned by yours truly in a moment of sheer genius on my part. I know how to take down abelists. I had to deal with two actually. Disabled people housing is full of abelists running it. I’d rather live in normal people housing at that point because I do not want to deal with their snooty condescension. Does anybody else remember a time when you had to piss off an abelist with your powerful abilities not your disabilities?
I have not heard back about an interview from that company in San Francisco. I’m still obsessed with managing type 1 diabetes. I have a phone interview today with a company in San Mateo. Let’s hope it goes well.
Iria
This is a chronicle of how I get in total control of my type 1 diabetes. This is going to be about the life of a talented psychic person. I am also writing about my hypothyroid and my schizoaffective bipolar. Today has been somewhat bad in terms of my glucose control. My blood sugar is behaving now but I was on the heels of two infusion set malfunctions. I use an insulin pump. There is a huge responsibility involved.
My goal is perfect control. I want an average of 125. It might be too low though. I have an interview tomorrow in sales. This job is in San Francisco. I will also have to meatsplain on this blog because I eat meat. I kind of have to. My body demands it. It helps me ground myself Other meat eating yogis are welcome. I want to become a yoga master. I would like to study everything except Bikram. BIkram is hot yoga which is not good for a type 1 diabetic. I have had diabetes 25 years this May. I have managed to stay out of the hospital 25 years this May.
I cannot find anybody psychic able to understand my disability. All they see is raw talent. I know of one person who has not emailed me back yet. I really need counseling. But anyway. If somebody out there can mentor, it would be greatly appreciated. I’m also a skeptic.
iriavp 