Type 1 diabetes diagnosis at 10, after two years of juvenile onset pre-diabetes. Onset of type 1 and total pancreatic failure happened at age 10, at Girl Scout camp. I got really sick, but at night while being cared for by another parent, I managed to get an alien visitation, tall whites, smaller greys, they brought a tablet of something they put under my tongue, to buy me some more time without insulin. They had put the parent in a trance of some kind, while they talked to me, but then they left. I woke up, and asked for water, that’s all I remembered until recently as aliens leave screen memories.
I was diagnosed with type 1 diabetes at the age of ten around May 31st, to June 7th of 1991 after two years of pre-diabetes symptoms. You see diabetes is perfectly treatable if caught early but due to circumstances beyond my control, it wasn’t caught on time. Although if Dr. Hartzell is reading this, I will say it wasn’t his fault, we know whose fault it was and leave it at that.
But anyway, total pancreatic failure happened at Girl Scout Camp, I had symptoms of a cold, that got me deathly ill. I was very ill, deathly ill, but didn’t know it as I hiked with powdered lemonade in water by my side. I had to pee a lot during all our hikes give or take since for the last two years, I was peeing a lot anyway. Back then I had no idea about my 22q, just knowing I wasn’t feeling 100%, which got worse when I had real maple syrup with breakfast, which back then was Eggo waffles.
These days, in comparison, breakfast, is toast or a muffin. Back to Girl Scout
Camp, I was drinking water a lot, going to the bathroom a lot, and I almost didn’t make it through the weekend. I was being cared for by another parent, only because this parent was going out of her way to take care of me, since mine hadn’t gone with me that time. This was part of the brainwashing I’d later endure, which said “Do not escape me, I demand you stay close to me so I can know where you are at all times.”
I was deathly ill but still functional, because eating was making me go to the bathroom a lot. Over night that weekend, the parent was helping me drink water, since I was thirsty without knowing why, also going to the bathroom a lot. We were isolated in a cabin, one evening aliens did enter; leave a tasteless yet powdery tablet under my tongue, and left. They were tall whites, greys, which had the authorization from what is known as the Galactic Federation Council to intervene. In the present, we got rid of 45 successfully, in a non-violent manner, although I was paranoid enough during the election, under a great deal of election stress, desperately wondering if the human race was going to survive this.
But anyway, in the past, I had to deal with my pancreas shutting down in a situation where I didn’t have any means to treat this. I was scared, but well, my family fed on my energy, because it must have been delicious at that time. I was a very ill camper who on the way home, got majorly motion sick. Girl Scouts had provided a perspective on myself I didn’t have in the toxic environment that was Catholic elementary school. But that is another blog post, for another time.
See even back then, at 10 years old, I had untreated pediatric schizoaffective and OCD, both illnesses are marked by high anxiety. I was stressed not to mention terrified. I got home; the cold turned into something else, flu? Mom thought it was the flu; my blood sugar was sky high at diagnosis, enough to put me in diabetic coma for around three days, without damaging my brain as it could have happened this way. I was thin, dehydrated, and not able to eat much. My mother was wondering what she was doing wrong, or what she had done wrong.
I was taken to the doctor, as 911 were called at the doctor. My family had assumed diabetes could not happen to children. My family friend had told mom to take me to the hospital, at some point. The thing is, nobody knew what this situation was save some of the doctors, and by nobody I mean my family. People didn’t know jack about it. They had no clue.
I almost died of type-1 diabetes, but I do not know my blood sugar at diagnosis. I wish I did but I don’t, that takes doing to extract information from the ‘rents. I’m trying to figure out a way to keep these memories from flooding me. I remember falling asleep at home, then waking up in the hospital. I had dreams, of the rose garden, a water park, and a horse galloping in grassland. These near death experiences are things I have rarely told my friends about. I almost died of a preventable illness, due to ignorance.
The rose garden, after reading several NDE books on the subject, is a common experience. I recovered from diabetes when given insulin, taught about injections, and in general put at ease about having it. Hospitals scare me to this day. It is why I rarely go to them. It is why I do not need to get sick with COVID, having done my usual fine job of taking good care of myself. As a Germaphobe, I get paranoid about the darndest things, since I can sense germs/see them/identify them.
I now know the same process can work with intestinal bacteria since I was working on a paper about that for Greyschool.net today. All my major assignments are turned in, ready to go, I’m waiting on grades in others. Yes, type-1 diabetes is scary for me to deal with daily. I’m trying to make my peace with it, because I need to get it under control. I’m trying to at any rate, and I didn’t admit I was a germaphobe until COVID-19 came out to try to control this planet. Right now, actual people who have the vaccine are medical doctors. I’m next in line, since I’m high risk with type-1 diabetes, etc. I’m high risk, so I’m staying home a lot, wearing a mask a lot, and being careful whom I hang out with. They’d better wear a mask. I’m doing my best to survive here.
I was born with a high enough IQ, despite my 22q/Velocardiofacial syndrome. I’m trying to own my disability here, but to force myself to get to Catholic Charities while nobody makes himself or herself available to talk to me, after I’m not feeling well, and having to take the light rail, shows total disrespect for my time. Assume that I do write daily, that my time goes into something resembling discipline and productivity. I’m offended by my region’s organizations that supposedly help disabled people like me find a job. I say supposedly only because this hasn’t happened for me yet.
I’m not as affected by my 22q, unlike other people. I’ve been ruled competent enough to work. I write copy for Textbroker, that is hard for normal people, it could be assumed this is hard for somebody with schizoaffective like me. I called someone out on his or her shit, as not having respect for my time is assuming a disabled person will put up with your crap. I’m fed up with my families’ lies about my IQ. Quit being ignorant about my genetic disability. Quit depriving me of knowledge about it, as you did throughout high school since I didn’t have a diagnosis of schizoaffective.
I practically diagnosed myself OCD, okay, so why the hell do rumors swirl in Spain about me? When somebody didn’t disclose my disability to family at all? If people are having children, they ought to be told about the possibility of 22q. Both my parents have the deletion I tell you, they just haven’t bothered with genetic testing, much less getting themselves treated for their schizoaffective and OCD. Throw OCD in there, and not being on medication is a nightmare. For once, I would like agencies in Santa Clara County to respect me, respect my time, and respect that I’m not as affected by my disability as other people.
A friend of mine about NAMI has already warned me; when someone warns you about a person, organization, or something else, listen to it. They mean it; they go out of their way to warn you, so there. I’m writing my anti-dating book because I’m writing down my experiences with dating, my horrific dating experiences, and why I’m not interested. I’m at least releasing my standards out there so that the “interested” parties know about it. If you can’t hang with my standards that I’m going to bother to start having, then you can’t hang with me. If you believe my parents lies, then you can’t hang with the family brainwashing tactics you will have to learn to resist although I desire no contact with family. I’m working on limited contact, since they do not change their behavior towards me. I don’t drink, at all, deal with that, and I don’t touch caffeine either, I need to take my medication when I go out, which is also something you have to deal with, and never for goodness sake, put me in a position when I can’t.
Sometimes mental illness can cause states of mind where you feel wired and tired at the same time. This is known as hypomania, which I had slipped into this weekend from waking up too early. This time of year does that to me. If I get consistent sleep, if the weather is not too hot as it has stabilized this year, if my medication is absorbing despite mr. hernia, then I’m going to be home free. Mr. hernia is causing me trouble, it needs to come out, I frankly need a ride to the clinic, and back home, someone kind and considerate, I know who it is but out of security I have to not talk about this too much in public. Yes, the woods are full of Her spies. But see, we keep family in the dark on purpose, mr. hernia is my business, I want it to stay that way so gossip mongering and fear mongering doesn’t spread.
Consistent sleep in a mentally ill person preserves good judgment. It means that you can organize information in your head, in my case. It allows for great writing to take place, because good writing is about making sure that you have all your words strung together right. Good sleep helps your body function as best it can. Sleep-depriving yourself is pretty pointless then. I mean doesn’t it seem pointless once you know about what good sleep can do for you? I’m trying to stay as healthy as possible with what is coming up, which is a scary medical test I’m not telling my family about. It is a scary enough medical test that I require anesthesia and a vetted for ride.
I’m happy to say that I’ve managed consistent sleep two nights in a row now. My goal is to wake up at 7 a.m. for a year, and get a consistent night’s sleep. This work is what will help me make money. I will be able to focus on my writing, write coherently, and get enough sleep to function. I will not be sick for a year if I get enough sleep as always happens when I’m well rested. Remember, I spent my childhood sleep-deprived, high-strung, strung-out on caffeine, and walking on eggshells at home. I’m living a different kind of life now, trying to get stable by waking up at 7:00 a.m. daily rather than at 4,5, or 6 a.m. Why am I doing this? I am trying to stay well here, amidst a pandemic. I’m trying to make sure I stay easy to get along with for most people.